Family fighting to pass ‘Gracie’s Law’ to protect Georgians with disabilities

ATLANTA, Ga. (WTOC) – A Georgia household and their native consultant have been working to cross laws that might shield organ entry for Georgians with disabilities.

“We’re speaking about lives right here. We’re speaking a couple of state of affairs that might save a life. This isn’t only a really feel good, do good invoice,” mentioned Consultant Rick Williams (GA-145).

Gracie Pleasure Nobles was born with Down Syndrome and has a coronary heart defect. Her mother and father David and Erin say their life was turned the wrong way up for some time.

“She began going into congestive coronary heart failure. We went again to the hospital and spent one other month or two within the NICU,” mentioned David.

Fortunately Gracie’s coronary heart surgical procedure was a hit, but it surely wasn’t till the Nobles household obtained residence that they realized an enormous “what if?”

“If Gracie would’ve wanted a coronary heart throughout all of this, there might need been obstacles that we face,” mentioned David.

The Nobles have been involved that an individual’s incapacity may restrict their likelihood of receiving a life-saving organ transplant. One thing Michelle Pendergrass says she went via along with her sister who additionally has Down Syndrome and went into kidney failure. Pendergrass says the medical doctors advised her that her sister wasn’t a great candidate for a transplant and that it’d be higher for her to go on dialysis.

“I mentioned, ‘Why? You haven’t finished any assessments but.’ There was no diagnostics, no medical analysis, they hadn’t seen any of her recordsdata or paperwork from her different medical doctors and so forth.” mentioned Pendergrass.

Erin Nobles says she typically will get requested why there must be a invoice like this when there’s federal laws that covers it, such because the People with Disabilities Act.

“In case you are preventing a case of discrimination the mother and father need to take this to federal courtroom and there may be the issue. As a result of in federal courtroom you could not get on the docket for six months to 2 or three years. Our neighborhood of individuals should not have time on our aspect to attend,” mentioned Erin.

Consultant Williams has labored intently with the Nobles on this invoice. Throughout this legislative session Williams says it handed unanimously within the Georgia Home of Representatives and now it’ll go to the Senate.

“I can promise you when this factor will get to the Senate ground there will likely be each senator signed on it too. This little Gracie, she melts your coronary heart,” mentioned Williams.

“When Gracie’s Law passes, if a member of the family is actively discriminated in opposition to or an individual, a cherished one with a incapacity, the members of the family can battle this battle within the native courts. They’ll get their case on the docket inside 30 days, not three years,” mentioned Erin.

Pendergrass, the Nobles household and Williams all say they’re hopeful that sooner or later nobody must undergo this discrimination.

“I had hoped that we had come far sufficient with disabled folks and folks with Down Syndrome that I wouldn’t have ever run into that. I used to be simply amazed that I did,” mentioned Pendergrass.

Copyright 2021 WTOC. All rights reserved.

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